Community Bulletin: How Bias Affect Clinician Attitudes About Caregiver Coaching | Spectrum
Hello and welcome to the community newsletter! I am your host, Chelsey B. Coombs, Spectrumengagement editor.
Our first thread sums up a short story Autism paper on caregiver coaching and how the attitudes of clinicians towards marginalized groups may hamper the evidence-based technique.
Research recently published by @Liza_Tomczuk, @rebbstew, @Rsbeidas, @DSMandell & @melpellecchia examined disparities in the use by clinicians of caregiver support with families from minority or structurally marginalized groups. Thread through @Liza_Tomczukhttps://t.co/CDNNuoAB5j
– Autism Journal (@journalautism) December 9, 2021
Clinicians are expected to observe a caregiver practicing early intervention methods with an autistic child and then give recommendations. But there are disparities between the people who receive this coaching, as the new work shows.
The researchers interviewed 36 early intervention clinicians at publicly funded agencies about how they decide which families will benefit from caregiver guidance. Some clinicians said they were less likely to recommend coaching for families with lower socioeconomic status and fewer resources.
“I would say the biggest challenge is when there are no materials at all. So sometimes we have poor children. There are simply no toys. This child has no playability because there are no toys, ”a clinician told researchers.
Clinicians were also discouraged from coaching when caregivers presented with language barriers, certain cultural beliefs, and competing demands, such as stress, mental health issues, and homelessness.
“I’ve had a few parents who dozed off if they were just exhausted or struggling with something, but the idea of ’What if you gave your kid lunch, you say’ More ‘? “Then when I went to the refrigerator with this child, I opened it and it was empty,” said another clinician.
To close this gap, society must give those living in extreme poverty the resources to meet their families’ basic needs, such as food and shelter, the team says. But clinicians also need to be flexible, tailoring play-based interventions that don’t require families to have access to toys, for example. And clinicians, who should come from a variety of backgrounds, should also receive training in implicit bias and anti-racism.
Pablo juarez, co-director of the Treatment and Research Institute for Autism Spectrum Disorders at Vanderbilt University Medical Center in Nashville, TN, tweeted that he and his group had “given a lot of thought (and adaptation) to the social determinants of health in our work here in TN.
This is focused on early intervention within Part C, but very relevant beyond. We have given a lot of thought to (and adapted to) the social determinants of health in our work here at TN. Share this with our team now. https://t.co/7VuJwYwVxs
– Pablo Juárez (@APabloJuarez) December 9, 2021
Diondra Straiton, a graduate student in clinical psychology at Michigan State University in East Lansing, Michigan, said she had heard similar stories from providers she worked with.
Excellent paper led by @Liza_Tomczuk! Supplier bias is a huge problem. @kylemfrost and I find the same results in interviews with providers here in Michigan who work with autistic children enrolled in Medicaid. I can’t wait to read more of your work! https://t.co/rCADMKfOmF
– Diondra Straiton (@DiondraStraiton) December 9, 2021
Straiton wrote another tweet that garnered a lot of community attention this week about the importance of reporting accurate data on study participants, especially as a new generation of autism researchers is entering. the domain.
PSA for Autism Researchers: Include all racial and ethnic information, not just “% non-Caucasian” and also include developmental level and chronological age. Stop saying sex when you mean the sex assigned at birth. The next generation of reviewers will call you – aka me, I’ll call you
– Diondra Straiton (@DiondraStraiton) December 8, 2021
Clare Harrop, assistant professor of paramedical science at the University of North Carolina at Chapel Hill, replied that she had previously used the terms “sex” and “gender” incorrectly in the articles, but that she is now hyper aware of the difference due to its shift in research focus. .
The assigned gender / sex drives me crazy. I’ve made this mistake in articles before, but not anymore (as a sex and gender researcher now!)
– Clare Harrop (@ClareHarropPhD) December 8, 2021
Meghan davidson, an assistant professor of speech, language and hearing sciences and disorders at the University of Kansas at Lawrence, tweeted that an undergraduate student’s research project in her lab could not be completed good because so few articles publish this key demographic information.
It should be obvious, but an undergraduate project in my lab shows it isn’t. We were unable to do scheduled scans because too many articles were missing this vital demographic information. https://t.co/jN7Y3cdOHH
– Dr Meghan Davidson (@mmdavidsonSLP) December 9, 2021
That’s it for this week’s community newsletter! If you have any suggestions for any interesting social posts you’ve seen in autism research, please feel free to email me at [email protected]
Cite this article: https://doi.org/10.53053/BTQZ8666